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Aligning Patient Preferences as the Goal for POTS Wellness Program Development

D'Ari Reed

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School: Cleveland School of Science and Medicine
Internship Track: Applied Medicine
Year 2018
Mentor: Robert G. Wilson, MD
Department(s): Neuromuscular Center
Abstract: Postural orthostatic tachycardia syndrome, or POTS, is a complex autonomic disorder and a form of orthostatic intolerance that affects circulation when the body undergoes postural changes. Patients who suffer from the disorder have a hard time living with it because they feel misunderstood by family, friends, and even caregivers and aren't receiving the support they need. Shared medical appointments (SMAs) are a group of up to 15 patients who share the same disorder and meet with a doctor who offers educational tips, feedback, and support to POTS patients. For the past five years, SMAs have been used for POTS patients and studies have shown that after attending three SMAs, patients show improvement in managing POTS on their own and live better lifestyles. Our hypothesis for this project was that by developing a daily wellness program for POTS patients, patients would be able to spend more time with multiple caregivers to discuss personal issues and engage in several beneficial group activities.